children with special needs
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I should have written this blog months ago but I didn’t. I have no excuse. Life happened and I decided to delay it. So what made me write it? Well, a blogger made a random comment and said that we are months away from Christmas. I found that funny and agreeable to me. How time flies!
That blogger’s comment reminded me of last Christmas 2012. Every Christmas there is one party that makes me sooooooooooo excited. Not because of the gifts (when actually there are overflowing gifts in this party, in fact, hundreds of them). Not because of the prizes (but actually there’s lots of loot to be given away– in every game). Not because of the holiday presentations (but there are so many song and dance numbers one after another). I am excited of this Christmas party because in this party I get to see not one, not tens not a hundred but hundreds of children. Oh yes, all 600 hundred smiling, happy and blessed children.
So what makes me giddy about Christmas?
Special Education Philippines is sharing a letter from one of its readers because I was inspired by her story for a child she cares for. Due to privacy issues the letter sender’s personal details will be changed to protect her and her family. She has agreed to share her story only to inspire other guardians of children-at-risk to come forward and become more active in seeking assessment. For the purpose of identification, we will call our letter sender as Mappy.
An Appeal Made for Nikki Lapus, a Child with Congenital Central Hypoventilation Syndrome (CCHS) to O.B. Montessori, Greenhills
Special Education Philippines will be re-posting the letter sent to me by Ms. Pam Mayo-Roman in our Facebook fan page.
Please read and pass on. An OPEN LETTER TO OB MONTESSORI – Greenhills was written by my friend Carissa Legua-Lapus, whose 6yr old daughter Nikki has a rare condition called Congenital Central Hypoventilation Syndrome (CCHS). In CCHS the body forgets to breathe during sleep. Nikki has a tracheostomy so she can be hooked to a ventilator when she sleeps.
It is a sad and unfortunate fact that kids with special health care needs in the Philippines are denied access to education because of the focus on medical needs. Nikki is a very smart girl. She has no learning difficulties. Just like every child, she is excited to go to school everyday. Is just so unfair when a school makes a decision without proper assessment of the child.
My heart goes out to you, Kare. You must be strong and not give up. We are with you in this journey. Love you Kare and Nikki.
I will be very thankful if you could share this in your page till it reaches the proper forum. Thank you in advance.
AN OPEN LETTER TO OB MONTESSORI – Greenhills:
Dear Ms. Soliven,
One day a close friend of mine asked me if I know any special school that caters for the blind and mute. I referred them to the Center of the Blind in Cubao where some of my co-graduate students spent their practicum there. But apparently, the child is not really mute but instead he has autism. For the sake of protecting the child’s identity, I will mention only details that will help the readers picture his condition. The child being male, almost 16 years old recently graduated from elementary in a public school. He enrolled in another public school because his former school offers elementary only. However, on the second day of class according to my friend the school rejected to continue providing education to the child. Instead they offered to give a non-graded education meaning that the child will go to school but he will not be given a grade to allow him to pass his level. The guardians of the child did not approve of this and that is why they are now desperate to look for another school. To add more pressure to the rejection, it is already the start of the school year and most public schools are booked.
I have been looking for news for K to 12 and its status on its first day of implementation and all I see in the online news is the same perennial problem that has plagued the Philippine education system – lack of books, school supplies, teachers, and classrooms. Multiple shifts in classes to accommodate the ever-increasing number of students enrolling every year. So how do you suppose the guardians of these child feels? Alone? Betrayed? Rejected?